Executive Team & Board of Directors

steve-perrin head

Steven Perrin, PhD

Founder & CEO

Dr. Perrin has twenty years of drug development experience holding positions at the Hoechst-Ariad Genomics Center, Aventis Pharmaceuticals, and as Director of Molecular Profiling at Biogen Idec. He joined the ALS Therapy Development Institute in 2007 to develop and manage a scientific and business strategy to bring effective treatments to the clinic for ALS patients. Over the past decade he has spearheaded the architectural design and execution of the world’s largest ALS Drug development Program bridging preclinical and clinical programs. He has created a novel business model bridging the philanthropic non-profit research community with for-profit medicine, including the co-founding of Anelixis Therapeutics. Dr. Perrin received a Ph.D. in biochemistry from the Boston University Medical Center. He is a frequent invited participant and speaker in international conferences on computational biology, genomics, drug development and neurodegeneration


Augie & Lynne Nieto

Augie Nieto Board Chairman

A pioneer in the fitness industry, Augie Nieto co-founded Life Fitness, a manufacturer of cardiovascular and strength training fitness equipment, in 1980. Over the course of 25 years, he grew the company to be the largest commercial manufacturer of fitness equipment in the world. In 2005, Augie was diagnosed with amyotrophic lateral sclerosis (ALS, Lou Gehrig's disease). Augie along with his wife, Lynne, founded the Augie's Quest initiative in 2006. He currently serves as chairman of Octane Fitness, is on the board of Curves & Jenny Craig, and is the Chairman of the Board of the ALS Therapy Development Institute.


Walter Ogier

Executive Chairman

Mr. Ogier has more than thirty years of experience developing therapeutic medical products ranging from pharmaceuticals to medical devices, stem and immune cell therapies and gene therapies. Following receipt of a BA (chemistry) from Williams College and an MBA from the Yale School of Management, he served nearly a decade with Baxter Healthcare Corporation in marketing and business development roles supporting the global adoption of bone marrow and adult stem cell transplantation before joining Aastrom Biosciences, where he served as VP Marketing and supported the company's successful IPO in 1997. He was subsequently President and CEO of Eligix (sold to BioTransplant in 2001), Genetix Pharmaceuticals (renamed bluebird bio, Nasdaq: BLUE), and he was President/CEO and co-founder of Acetylon Pharmaceuticals (sold to Celgene in 2016) and of Regenacy Pharmaceuticals (spun out of Acetylon at the time of the Celgene acquisition). Mr. Ogier currently continues as a director of Regenacy Pharmaceuticals and also serves as a director of Thetis Pharmaceuticals, Biothera Pharmaceuticals, and Katahdin Pharmaceuticals

Preclinical & Clinical Development Team

  • Maeve McNally, Executive Assistant to CEO & Founder/Operations Manager
  • Patricia Williams, Regulatory Affairs
  • Jamie Hutchinson, Clinical Operations
  • Joy Cavagnaro, Ph.D., DABT, RAC (Toxicology)
  • John Bennan, MBA (CMC, Quality Assurance)
  • Stephen Notarnicola, Ph.D. (CMC, Manufacturing)
  • Fred Taylor, Ph.D. (Protein Biochemistry)
  • Ellen Stark, Ph.D., Antibody Engineering

Clinical Advisory Board

  • Jinsy A. Andrews, M.D. (Columbia University)
  • Stanley Appel, M.D. (Methodist Neurological Institute)
  • Nazem Atassi, M.D. (Massachusetts General Hospital)
  • James D. Berry, M.D. (MGH Neurological Clinical Research Institute)
  • Merit E Cudkowicz, M.D. (Massachusetts General Hospital, Harvard Medical School)
  • Jonathan Katz, M.D. (Forbes Norris MDA/ALS Research Center)
  • Jeremy M. Shefner, M.D., Ph.D. (Barrow Neurological Institute)
  • Angela S. Williams, M.D. (Montreal Neurologic Institute, McGill University)